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HEADS UP CELIACS! WHEAT-FREE OATS NOT WORRY FREE!

Heads Up Celiacs! Wheat-Free Oats NOT Necessarily Safe! At this time in Canada, 'regular/commercial/organic' oats or...

Posted by The Celiac Scene on Wednesday, March 25, 2015
STUDYING NON-CELIAC GLUTEN SENSITIVITY
INFO SHEET - WHAT IS CELIAC DISEASE
DAIRY QUEEN DOES GLUTEN FREE!!
CELIAC & GLUTEN-FREE SUPPORT – USA
CCA POSITION STATEMENT - PURE OATS FOR CELIACS
CELIACS AT INCREASED RISK OF NON-ALCOHOLIC FATTY LIVER DISEASE
SUPPLEMENT INDUSTRY STILL SELLING SNAKE OIL?


CELIAC-SAFE FRENCH FRIES IN VICTORIA, BC


WHEAT in McDONALD'S FRENCH FRIES


Lack of Patient Follow Up Associated with Poor Adherence to Gluten-Free Diet
Study preview reveals that 35% of pediatric celiac disease patients are lost to follow up. Lack of follow up was positively associated with non-compliance to the gluten-free diet. Read more ...
Seven Myths About CD & GF Eating!
Take the test and see whether you are harboring misconceptions about the disease and the diet. Read more ...
WebMD Offers Comprehensive Gluten-Free Diets Directory
News, Features, Pictures, Videos and Medical References. Easy-to-understand language for the newly diagnosed, gluten-curious, family members and children.
Read more ...
CONSUMER WATCH: Little evidence that a gluten-free diet is a healthier choice.
Review of nutrition labels for more than 80 gluten-free foods shows little evidence that a gluten-free diet is a healthier choice. In fact, there may be hidden risks! Read more ...
MY BODY IS NOT A TRAINING GROUND!
"ImmusanT’s vaccine is meant to train the immune systems of celiac disease patients to tolerate gluten." Why go to school when the gluten-free diet is your PhD for CD? Read more ...
Why Not in Canada? Food Allergy Laws Enforced Starting Tomorrow in Britain Restaurants
Rules aimed at ending the "Russian roulette" food-allergy sufferers face when eating in restaurants, take-aways, schools and hospitals come into force in Britain on Saturday in a move safety watchdogs hope will cut an annual toll of 10 deaths a year and more than 5,000 hospital stays. Food outlets will have to provide details about 14 allergens, including nuts, milk, mustard and lupin seeds, which are often used in flour. Information has to be listed on menus, chalkboards or information packs, or customers must be able to get written or spoken details from staff. Read more ...
Providers Stray From Guidelines For Diagnosis and Management of Celiac Disease
Only one-fifth of surveyed health care providers said they would diagnose celiac disease using endoscopic examination, which is the diagnostic gold standard. The findings, which were presented at the 2014 annual meeting of the American College of Gastroenterology (abstract P180), also revealed that nearly 10% of clinicians would not recommend the mainstay therapy for celiac disease, a gluten-free diet, as the first line of treatment for newly diagnosed patients. Read more ...
ACG Clinical Guidelines: Diagnosis and Management of Celiac Disease ...
When a Gluten-Free Diet Isn't Helping
As reported in the American Journal of Gastroenterology, a study of Celiac disease patients who have followed a long term gluten-free diet but still have gastrointestinal symptoms can have abnormal intestinal microbiota. Results showed that patients with persistent symptoms had different duodenal microbiota composition compared with patients who did not have symptoms. Read more ...
Celiac Disease or Non-Celiac Gluten Sensitivity?
Differentiating between celiac disease (CD) and non-celiac gluten sensitivity (NCGS) is important for appropriate management but is often challenging. Researchers have developed a diagnostic algorithm to differentiate CD from NCGS. Read more ...
66% Adult Celiacs Following a Strict Gluten-Free Diet Make Complete Recovery After One Year
66% of adult celiac patients who successfully follow a gluten-free diet can make a complete histological recovery after 1 year. However, patients with severe histological damage at diagnosis who successfully follow a gluten-free diet remain at risk for incomplete histological recovery. Patients who do not follow a gluten-free diet have no hope of making a full histological recovery. Read more ...
UNDER REVIEW - SAFETY OF PURE OATS FOR CELIACS


PREVALENCE OF CELIAC DISEASE TO REACH 8 MILLION
A new Epidemiology forecast has estimated that the prevalence of celiac disease will increase to more than 8 million cases in the US, France, Germany, Italy, Spain, and UK by 2023. Read more ...
Study Finds Celiac Patients Receive Poor Medical Follow Up
Care providers should test for nutritional deficiencies and monitor antibody levels, according to Dr. James Murray. Read more ...
PURE Oats Found to Cause Immune Response in Some Celiacs
A ten year study found PURE oat consumption triggered an immune response similar to those caused by eating barley in 8 per cent of the 73 participants with celiac disease. Read more ...
PURE Oats May Hamper Normalization of the Intestinal Immune Status in Celiac Children
Sjoberg et al. (Clinical and Translational Gastroenterology, 2014) found that the number of patients with normalized mucosa was significantly lower in a substantial fraction of pediatric CD patients in the [PURE] GFD-oats group … in line with high intraepithelial lymphocytosis. Read more ...
Non-Gluten Proteins in Wheat Troublesome for Celiacs
Study finds that non-gluten proteins in wheat – such as serpins, purinins and farinins – provoke an immune response in celiacs. While celiac patients already avoid wheat, wheat starch may require further investigation as it can have non-gluten protein contamination. Read more ...
Study Shows Altered Microbiota Linked to GI Symptoms in Celiacs
Abnormal intestinal microbiota [bacteria] was associated with gastrointestinal symptoms that persisted in patients with celiac disease despite adhering to a long-term gluten-free diet. Read more ...
Government of Canada makes it easier for Canadians to choose gluten-free foods
New labelling will allow “gluten-free” claims for specially produced oats! This proposed change is based on an extensive review of scientific literature and evidence, which shows that most people with celiac disease can safely eat foods made from specially produced oats that contain levels not exceeding 20 parts per million of gluten from wheat, rye, barley or their hybridized strains. Read more ...

Celiac Disease, Gluten Sensitivity, Gluten Ataxia & Wheat Allergy?
All of these conditions are within the Spectrum of Gluten-Related Disorders. Learn how they relate / interconnect (or not) with this colour-coded graphic. Read more ...
The Big Autoimmune Picture – 100+ Diseases
According to the American Autoimmune Related Diseases Association asserts that autoimmune disorders are a growing concern worldwide. The underlying cause of more than 100 serious, chronic illnesses, of the 50 million Americans living and coping with autoimmune disease (AD), more than 75 percent of them are women. Currently AD’s are one of the top 10 killers of women under the age of 65. Included in the 100+ autoimmune diseases are lupus, rheumatoid arthritis (RA), Sjögrens syndrome, psoriasis, celiac disease, scleroderma, and type 1 diabetes.
Read more ...
Autoimmune Disease - the Common Thread ...
Autoimmune Disease in Women ...
Phase 1/2 Study for Novel Celiac Treatment Successful
BioLineRx BL-7010 effectively masks ingested gliadin from enzymatic degradation, preventing the formation of immunogenic peptides that trigger the immune system in celiacs. Read more ...
Association Between Autism Spectrum Disorder & Celiac Disease?
Nationwide study found no association between CD or inflammation and earlier ASDs however there was a markedly increased risk of ASDs in individuals with normal mucosa but a positive CD serologic test result. Read more ...
Researchers Seek Diagnosed Celiacs Aged 12+
Researchers from the School of Health and Exercise Sciences at The University of British Columbia at Okanagan are currently looking for 200 youth ages 12-17 and 80 adults who have been diagnosed with celiac disease to participate in a study about experiences with celiac disease.

NOTE: You do not have to follow a strict gluten-free diet to participate in this study. We would like to invite you to participate in this study if you meet the eligibility criteria and agree to participate.

PARTICIPATION: The study will involve completing an online questionnaire at two time points (Time 1 [baseline], and Time 2 [1 month after baseline]. It will take participants less than 30 minutes to complete the questionnaires at each time point (60 minutes total).

WIN: After completing the study you will be entered into a draw for a 1 of 8 $50 Visa gift certificate. For further information about this study please contact Justine Dowd at celiac.ubc@gmail.com

Thank you for your time. Justine Dowd, PhD Mary Jung, PhD
Celiacs More Prone to Fractures
People diagnosed with celiac disease are almost twice as likely as those without it to break a bone, according to a new review of the evidence. Scientists uncertain whether this is the result of the disease itself of the prescription, the gluten-free diet.
Read the article ...
Read the study ...
What if gluten is not the problem?
A third of Americans are thought to be avoiding gluten. Could there be something else contributing to their bloating / digestive issues. Read more ...
No early window of opportunity to help sensitize a baby to gluten
Studies by Dr. Alessio Fasano et al found delaying its start until 1 year of age just briefly postpones the onset of symptoms. Read more ...
Research Looks to Microbiome as Cause of Celiac Disease
Dr. Alessio Fasano, MD, director of the Center for Celiac Research and chief of the division of pediatric gastroenterology and nutrition at Mass General Hospital for Children suggests that "… there is something other than gluten in the environment that can eventually tilt these people from tolerant to the immune response in gluten to developing celiac disease.” Read more ...
Do anxieties about celiac disease symptoms affect your quality of life?
While this study is about Irritable Bowel Syndrome, the message can be applied to those with Celiac Disease and Gluten-related disorders, too. Read more ...
Incidence of Celiac Disease in Patients with Autoimmune Hepatitis
Dutch study of 460 patients with autoimmune hepatitis reveals increased seroprevalence of celiac disease. Read more ...
Gluten-Free Diet As a Performance Enhancer?
A growing number of recreational and professional athletes have been avoiding gluten in a bid to boost their performance, but there has been little scientific evidence of whether the dietary strategy works. Read more...
GLUTEN-FREE HALLOWE'EN CANDY LIST!
CLICK HERE! Canadian Gluten-Free Hallowe'en Candy List 2014.
Are VERY HIGH blood test results predictive of positive biopsies for Celiac Disease?
This study was seeking to determine whether a high response to the TTG screening test for celiac disease is as accurate as the current method of diagnosing celiac disease which entails a general anesthetic and upper endoscopy to obtain biopsies of the small intestine. If the screening blood test is highly accurate, then some patients that are being evaluated for celiac disease may not require an upper GI endoscopy and can be treated more quickly. If they respond to the therapy (a gluten free diet) then they will be deemed to have celiac disease.

Conclusion: Only VERY HIGH titre results –greater than the range of the test used (<200 in this case), were reliable in predicting positive biopsy results.

Reported to the Journal of Pediatric Gastroenterology and Nutrition in 2006 by Dr. Colin Barker at the BC Children’s Hospital, however the research and the full study was not completed until 2011. Now with genetic testing being available, with HLA-DQ2 and HLA-DQ8 being identified as the Celiac genes, in addition to the serology or blood test, it is now common practice at the BC Children’s Hospital to not perform upper endoscopies on pediatric patients when a genetic marker is present and the Celiac Disease screening test response is found to be very high for the stereology test range.
Read more ...
Three "Downsides" to the Gluten Free Diet!
Three "downsides" to the gluten free diet if you have Celiac Disease or IBS and eat packaged foods. Check out this article for more information! Read more ...
Gluten Free Food Products Must Address Metabolic Disorders
In an Italian study to be published this November in the Journal of Medicinal Food, metabolic disorders in those diagnosed with Celiac Disease will be discussed along with how these disorders can be further managed, in addition to being on a gluten free diet. Some of the metabolic disorders covered are obesity, lipid metabolism, nutritional deficiencies and comprised gall bladder and intestinal functions that are found in those with Celiac Disease, post diagnosis. Once the full study is released next month, we will try and post it for you, if it is available for viewing. Read more ...
Delayed Introduction to Gluten Appears Not to Prevent Celiac Disease in At-risk Infants
Massachusetts General Hospital on Oct, 1, 2014 "One of our most important findings was that the timing of gluten introduction – whether early or late in the first year of life – made no difference to the subsequent development of celiac disease," says Carlo Catassi, MD, co-director of the Center for Celiac Research and Treatment and principal investigator of the study. Read more …
Is the Gluten Free Diet sufficient to prevent serious complications related to celiac disease?
A new study from Italy has been published discussing how this could affect you. Read more ...
New Test Could Simplify Diagnosis of Celiac Disease
Rapid and accurate, new test offers hope for individuals who have already eliminated gluten from their diet. Read more …
GLUTEN-FREE DIET CLASS
• Need it? Want it? Live it! Love it!
• No diagnosis required! Just a desire to be gluten free!
• Two hour information session offered by the gluten-free experts!
• Taught by volunteers from the Celiac Scene and Canadian Celiac Association (CCA)
• Saturday, July 19, 10 am No class in August. Next class Saturday, September 20
• Cost: $65. If already a CCA member, the class is free
• Family/friend welcome at no charge.
• Receive a CCA New Member Kit; Pocket Dictionary of Allowable Ingredients.
• Recipes for fail-proof gluten-free baking, where to shop to how to dine out - safely!
• Gluten-Free goodie bag to go!
• Content and pace geared to adults and teenagers. Must preregister - no drop ins.

Click here for more information ...
More benefits ...
RSVP to ellen@theceliacscene.com

Space donated by Thrifty Foods ...
Visit their Gluten-Free Living page ...
Gluten-Free Product list ...
CELIAC PARENTS OR PARENTS OF CELIACS
The 'Celiac Parents or Parents of Celiac Kids' Facebook page is a 'closed page'* whereby parents, grandparents or caregivers of celiac children can care and share together. Celiacs who are contemplating parenthood are also welcome. Moderated by The Celiac Scene, it is the members who set the tone and the topic. There are currently 60 members from Victoria and across Canada, so while some off-page, in-person socializing may be possible, our love of our celiac kids is what binds us.

Ask to join or recommend someone else to join this group
Celiac Parents or Parents of Celiac Kids
Ellen@theceliacscene.com

* Non-members can see the Group and who is in it; only members can see posts.
Start the Conversation on GF Dining
Celiac disease and the gluten-free diet are enjoying unprecedented publicity. That's a good thing! But how can a person be sure that a restaurant can really deliver on its gluten-free promise? First, check The Celiac Scene for trusted restaurant recommendations. If possible, call ahead during off hours to make arrangements. You may well receive the royal treatment! Then download our list of gluten-free conversation starters. Remember, even if you have dined at a restaurant before, ingredients, procedures and staff can and do change without notice.

START THE CONVERSATION ON GF DINING
Concerns About Gluten-Free Food
If you believe a food, product or meal is being misrepresented as gluten free or presents a health or safety risk to gluten-free consumers, do your part to advocate for safety. Contact the Canadian Food Inspection Agency (CFIA) by email or call 1.800.442.2342.

You will be directed to the appropriate department. Your name and the information that you provide will be kept strictly confidential. The CFIA endeavors to educate first however will take precautionary measures should public safety be at risk. Common gluten-free concerns:

• gluten bakeries that proffer 'gluten-free' baking
• ingredients used are not labelled gluten free
• ingredients used do not have a 'Certificate of Analysis' for gluten
• items mixed, baked, stored or displayed in a wheat environment
• pizzerias that offer a gluten-free crust but do not prevent cross contamination

The CFIA also offers automatic email notification of food recalls and allergy alerts. Sign up at www.inspection.gc.ca. Select your language of choice and then choose the E-mail Notification Services in the Quick Link list on the right side of the window. You can choose to be be notified about a specific allergen or choose 'All Allergies.'

EMPOWER YOURSELF! Health Canada's Position on Gluten-Free Claims
Guide for Gluten-Free Living
Created by celiac Elke Haggerty with the assistance of Sherry Granger of 'Celiacs on Track Club' in Grande Prairie, Alberta, the 'Guide for Gluten-Free Living' provides practical information on the why and how of going gluten free.
PLEASE NOTE: The Guide is not a replacement for professional medical advice.

• What is Celiac Disease?
• Signs and symptoms of Celiac Disease
• Testing and diagnosis
• Why it is important to follow a gluten-free diet if you have Celiac disease
• What is gluten?
• Ingredients to avoid and others that are, in principle, safe
• General rules on staying gluten free (e.g. concerns over contamination)
• The nutritional impact of going gluten free
• Tips on baking, shopping and traveling
• Lists of useful books, websites and organizations • Links to blogs and recipe sites
• A basic menu plan for 2 weeks (packaged food and home made options are given)
• Basic recipes to get you started •

ABOUT THE GUIDE FOR GLUTEN-FREE LIVING
DOWNLOAD THE GUIDE FOR GLUTEN-FREE LIVING
Shelley Case, RD: The Definitive GF Diet
When it comes to understanding the gluten-free diet, look no further than 'GLUTEN-FREE DIET: A Comprehensive Resource Guide' by celiac disease expert, Shelley Case, RD. A copy of her book is a must for the gluten free.
ORDER HERE
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